Tag Archives: chronic pain

25Aug/15
IMG_0175.JPG

I am in pain

We often say I am in pain but does this really describe what is happening. Knit-picking perhaps, but I think that what we say, the words we use and the way that we use them are fundamental to being human and who we are as individuals. The innumerable phrases that have been passed down the generations will have their origins in a time was very different. So how relevant are they now? And how useful?

Someone says to you, I am in pain and instinctvely you know what they mean. You cannot possibly know what they feel or how they are feeling it, but you know that they are feeling something unpleasant and want you to know about it. There is a point to telling others about your pain, perhaps to seek help or advice, to gain sympathy or to give reason for non-participation for example. These are all accepted reaons for sharing, and would typically be known as part of the social dimension of pain. 

However, we cannot really be ‘in’ pain. We can feel pain, pain can emerge from our very being (this includes our body) and pain can hurt, but you cannot be in pain. You can be in a house, a car or tent. Being in something suggests that you can get out. If you say that you are in pain, it suggests that you can get out of pain. Now, pain changes and is transformed (we are not in a constant state of anything, hence pain comes and goes like any other state–pain is part of a protective state), but you cannot get out of pain because you cannot be in pain. There is no entrance or doorway to pain that once you have entered requires you to find an exit. 

Should we change our terminology and what effect would that have? I don’t think it will really change anytime soon, however when clinicians are thinking about the pain being described by an individual, it is more accurate to  consider the whole person from where the pain emerges in a particular location, with the underpinning biology involving many systems upstream of the lived experience. A story book requires a reader, words on a page and the book to be bound together. The book is the body that is read yet the reader must take the words and create a meaning, a story that makes sense, lived in his or her whole person–a beautiful description is felt and lived through the whole person involving complex biology that is a blended mind-body; embodied cognition. Our body is a story book yet the story is our experience. Changing the terminology will occur with time and as the understanding of pain evolves. 

The growth of pain understanding is vital as a basis for informed choices and treatment choices–one of the biggest reasons for chronic pain being the number one global health burden is the lack of understanding, whereby the medical model continues to predominate treatment choices; i.e./ target treatment at the place where pain is felt in the body. This misses the point of pain as part of the way in which a whole person protects himself/herself, and indeed much of our common language contributes to an old belief system that our generation has been brought up upon. Evolution takes time and of course a new and more complex explanation to replace one that is simple, will be threatening. Nonetheless, this is where we will go as people experience failed treatments or do not reach the expected outcomes alongside developments in pain science that become increasingly known in the public domain. This knowledge will demand that things continue to change, and as a result so will our language. As is common though, this is a two way street and if we take opportunites to change our language, then we are using the social dimensions of pain to create learning opportunities that lay the foundation for perceptual shifts. And there’s one thing that changes pain, and that’s a perceptual shift.

Richmond with Georgie Standage co-founded UP | Understand Pain, a campaign to raise awareness of the problem of pain and what we can do to overcome pain — we are no longer managing pain, we are changing pain and coaching people back to a meaningful life. The next UP event is in October when more than 1000 singers will be performing; even more than last time! 

The Pain Coach Programme is a comprehensive strengths based approach to overcoming pain. Call us on 07518 445493 to start your programme.

20Aug/15
puppy love by Porsche Brosseau https://flic.kr/p/cu9h5h

Pain and compassion

puppy love by Porsche Brosseau https://flic.kr/p/cu9h5h

puppy love by Porsche Brosseau https://flic.kr/p/cu9h5h

Pain and compassion are being explored at a forthcoming British Pain Society Conference, so I thought that I would comment on a couple of important aspects.

Firstly, as clinicians compassion plays a role in our desire to guide and treat others in pain and most likely coloured our choice to become a health-carer in the first instance. Secondly, I find that the vast majority, if not all those I see are compassionate people to everyone (or most!) except themselves. Here are some brief thoughts.

Compassion is defined as ‘inclining one to help or be merciful’ (Oxford Dictionary). The Dalai Lama describes compassion from a Buddhist viewpoint: ‘Compassion is said to be the empathetic wish that aspires to see the object of compassion, the sentient being, free from suffering’. There must be an object of compassion that is another individual or of course the one that is often forgotten, oneself.

The feeling of compassion is often described as a warmth across the chest; the type of feeling associated with seeing a small, defenceless animal, or perhaps a newborn child. This feeling enhances our empathy, which drives actions of kindness towards that being. As a clinician there are clear benefits of cultivating a compassionate approach towards patients who suffer the consequences of pain, particularly on-going pain. Certainly compassionate listening and actions are skills to be nurtured as they envelope the therapeutic encounter with essential authenticity. Compassion also creates an environment and a context for effective and skilful communication; an openness that encourages the patient to express themselves as themselves, revealing the challenges that can be surmounted with a joint therapeutic effort. The importance of the clinician being kind to himself or herself is akin to that of the patient. Looking at ways to grow and flourish, to be a better clinician requires acknowledgement of the current standing, acceptance and a desire to improve, yet without self-criticism.

Frequently patients will illustrate their harshness towards themselves. This punishment and criticism fosters angst, frustration, anger and other negative emotions that are draining, damaging and ultimately wasteful as energies are put into everything but clear thought and action towards improvement. At any given time, one does his or her best based on their knowledge and skills — everyone makes mistakes, which the wise learn from and see the opportunity in errors, the opportunity to develop. Learning to be kind to oneself, often breaking a habit of some years (many people I see are perfectionists; but in some arenas this trait is very useful and a strength that enables high performance resulting in success; so let us learn how and when to utilise it), is a vital part of learning how to overcome pain, especially persisting pain.

Here are several videos that are useful to that end:

Learning about compassion towards oneself and others is part of the Pain Coach Programme for overcoming and transforming persisting and chronic pain. Call us to book your appointment: 07518 445493 | Clinics in London | Sessions available on Skype on request

12Aug/15
Trust Strength Focus | DiddyOh | http://bit.ly/1ToCvPt

Using your strengths to overcome pain

Trust Strength Focus | DiddyOh | http://bit.ly/1ToCvPt

Trust Strength Focus | DiddyOh | http://bit.ly/1ToCvPt

Using your strengths to overcome pain is a fundamental principle of the Pain Coach Programme. Everyone has strengths such as focus, creativity, self-confidence, compassion and empathy. We have used these strengths during our lives to achieve success, at work for example. What I find however, is that people are not using their strengths to overcome their pain, and instead fall into a passive role and hope that something or someone will help — medication is a common one of these! ‘That will solve my problem’, but of course pills do not teach you how to return to a meaningful life, that only comes from the lived experience.

In the first meeting we discuss your pain, problems, story and life so that we can identify where we must begin and the strengths that you have that will enable the necessary actions. You will be using strengths in certain arenas, but probably not in that of your health and pain. The focus is absolutely on your ‘cans’ and not your ‘can’ts’, developing these with strategies and progressions so that the former facilitate the latter with time, practice and perseverance.

One very common example of practicing a strength on a day to day basis but not for oneself is compassion. This means that the person is kind, caring and giving, but not towards themselves. To give is rewarding and health giving, but you must be kind to yourself to do this with most effect. In fact, it is distinctly unhealthy to be repeatedly hard on yourself as it creates much angst, worry and anger that creates chronic stress that in turn creates a chronically inflamed state. Developing kindness and compassion towards oneself then is part of developing your strengths to overcome pain.

The Pain Coach Programme is all about developing your strengths and using them to effectively face the moment to moment aspects of pain as well as an overall approach to desensitising and relieving pain. To follow the programme of exercises and techniques, you need motivation, resilience, focus, energy and an ability to deal with distractions from your end goal. Pain Coach prepares you and guides you so that you become your own coach and move forward to a meaningful life once again. There is only one person who changes and transforms pain and suffering, and that is the person who is currently suffering. They just need to know how to do it!

To start your Pain Coach Programme for chronic and persisting pain, call us now: 07518 445493

Common reasons for starting the programme: back pain | neck pain | RSI | CRPS | sports injuries | arthritis | pelvic pain | IBS | migraine | headache | dystonia | chronic pain | sciatica

05Aug/15
Important Message by Patrick Denker | https://flic.kr/p/a9iUAG

Messages about pain

Important Message by Patrick Denker | https://flic.kr/p/a9iUAG

Important Message by Patrick Denker | https://flic.kr/p/a9iUAG

When someone seeks help for their pain and injury, they will be given messages about pain that are potent. They are told a, b and c, and hence often take these messages and become them via their own thinking and actions. This is the reason why the early messages about pain need to be accurately based on what we really know about pain and that they motivate people to focus on what they must do to recover. The way in which we think about and hence perceive our pain has tremendous impact on the extent of suffering and how we actually experience the pain itself. Put simply, a lack of understanding that can create concern, worry and anxiety, will raise the threat value of the whole situation, and therefore the body (you) protects further, including an increase in the intensity of the pain itself. All these experiences of thought and action are chemically based — depending on which chemicals are working with which receptors determines how the body systems are functioning and underpinning what we live out.

So what should the messages contain?

1. Facts about pain and the injury, including the poor relationship between the two, that pain is part of a protective response that includes other protective means such as altered movement (e.g. limping) and that the way we think and feel influence both the amount of suffering we endure as well as the actual intensity of the pain itself.

2. The person has an active role in overcoming pain — based on (new perhaps) understanding of pain and person, what is happening, why it is happening and what action needs to be taken.

3. Other relevant information to develop the person’s understanding, and in so doing, gain their trust, respect to follow a programme that motivates through positive thinking and experience towards their vision of how they want to be and live their life.

Undoubtedly, as with any problem we must understand it before we can deal with it. In the case of chronic pain, explanations incorporate the biological changes, behavioural changes and cognitive-emotional changes afoot and how to address these comprehensively–whole person.

The whole person approach recognises that there are many inter-related dimensions of that person, and that we must consider the individual as a whole rather than a back or a knee or any other structure or pathology. The experience of pain and other symptoms is a conscious leap from the underpinning biology, and no-one fully understands how our bodies, our ‘selves’, make that leap from biology to the lived experience. However, listening carefully and compassionately to the individual provides many clues as to why they are in protect and survive mode, emerging as pain and other symptoms, behaviours, thought processes and ultimate actions. This becomes the start point for designing a bespoke, proactive programme, beginning with the right messages.

Whilst the first meeting may identify where the actions taken by the individual are incongruent with recovery, it is worth remembering that this person is doing their very best with the knowledge and skills that they possess at that moment. Everyone has strengths with which they attained success in a range of arenas. Elucidating these strengths creates a start point and also allows that person to know and start feeling that they have the tools to overcome pain, but need guidance on how to best use them. That is our job.

This approach is part of The Pain Coach Programme for individuals to overcome their pain problem and for clinicians seeking to learn the Pain Coach approach for chronic pain. Contact us for more details if you are suffering chronic pain or a therapist wanting to advance yourself in the field of chronic pain: 07518 445493

20Jul/15
vintage typewriter by philhearing | https://flic.kr/p/9pRzps

Gillian’s story | back pain and mindfulness

vintage typewriter by philhearing | https://flic.kr/p/9pRzps

vintage typewriter by philhearing | https://flic.kr/p/9pRzps

Many thanks for Gillian’s story | back pain and mindfulness

MY PAIN STORY – GILLIAN WESTON

I am always a busy person; I play short mat bowls several times a week and have represented my County and England, I run a Junior session for bowls, I love to swim and I am a member of Horsham Rock Choir. I use a computer as the main part of my job of Practice Manager for a charity.

My problems began in 2010 when I slipped on some ice and inadvertently tried to break my fall with my left arm. I had restricted movement and upper arm nerve pain but after some physio my situation improved.

In Dec 2012 I developed pain in both arms after lifting a heavy object at work. I was referred for physio in Jan 2013 when I was diagnosed with tennis elbow in my right arm and shoulder impingement/tennis elbow in the left. After some exercises my right arm improved but I had further physio in the following months for my left arm. During this time the worst aspect was the nerve pain from my elbow to my hand – no painkillers relieved it, and I was in constant pain with or without movement, even scratching my face or lifting a kettle were agony!

In September 2013 when I was still in a lot of pain and had a further condition added – ulnar nerve entrapment – I was given 2 steroid injections. There was an improvement but of course the underlying problems were still there and in January 2014 there was a return of my intense pain. A further course of steroids followed, but the actual injection was excruciatingly painful and I was left with numbness in my ring finger. I was pain free until Nov 2014 when I moved a pot in the garden and experienced a twinge in my elbow, the problem was exacerbated when I used a simple screwdriver in Dec at work and I ended up in the worst pain I had had for some time.

By Jan 2015 I was at the end of my tether and rather than go the NHS route saw a physio who I knew privately. She felt that my neck was also the cause of my problem plus bad posture. Her approach was more holistic and she gave me some acupressure to try and calm me down from my very distressed state. She even suggested counselling as she was concerned about my mental health as a direct result. I was at various times loaned a TENS machine, given ultrasound and massaged. She helped me address by posture and gave discussed calming techniques. She discussed with me how my mental state was affecting my pain but I was sceptical about this at the time and more or less dismissed it. There was a degree of improvement in my condition over the following month thanks to the new physiotherapist but I was still struggling day to day.

During all these periods in and out of pain I have had to stop playing bowls and going swimming, use my right hand more – particularly with the mouse at work, been unable to sleep on my left side, been restricted doing the dance moves at choir, and not been able to do many day to day things that I used to take for granted.

In March 2015 I attended Heathrow Airport with Horsham Rock Choir where Georgie Standage my choir leader and Richmond Stace were hosting an event for UP. I took one of the flyers and did my research via the UP website. I found the videos very interesting – in particular the one explaining how “all pain comes from the brain” (Lorimer Moseley). I took particular interest too in the mindfulness videos. But I also found the written information really useful too. Over the following weeks I used mindfulness apps and also ‘talked’ myself out of pain. When I felt pain I closed my eyes and tried to focus on other parts of my body; if I hit my weakened elbow (as I do frequently!) I told myself that it was fine, it would hurt for a while and then I’d be OK. I used Mindfulness to keep me calm and I found that my nerve pain lessened in the weeks that followed.

By May I was able to resume my bowls for short periods to use my mouse at work left handed, do my Rock Choir moves without pain and return to swimming. Significantly I can sleep for periods on my left side without pain – which I haven’t done for a long time!

It is now July 2015 and I have been pain free for just over 3 months–other than the odd elbow bash! I do get the occasional twinge, and very interestingly if I am stressed about anything I get a bit of nerve pain in my arm! Looking back some of the worst pain ties in with significant stressful times in my life. I am still wary and careful about exacerbating things, but importantly I feel that “yes I do have pain sometimes, but pain doesn’t have me”. I am indebted to UP for giving me my life back, and I continue to use the techniques I have learnt – in particular the Mindfulness Breathing – to keep me calm and in control.

20Jul/15
Photomarathon - Alphabet by Eva Van Ostade | https://flic.kr/p/i84n6g

My A to Z of pain

Photomarathon - Alphabet by Eva Van Ostade | https://flic.kr/p/i84n6g

Photomarathon – Alphabet by Eva Van Ostade | https://flic.kr/p/i84n6g

My A to Z of pain –

This is by no means exhaustive, but rather a brainstorm of some of the most salient features of the Pain Coach Programme to overcome chronic pain and injury.

I am sure that I will mould this and re-shape it in time, as you are also free to from this basic framework. At the heart of the thinking lies the person suffering persisting pain, whereby their sense of self and who they feel that they are has been compromised and affected by the pain. Pain often becomes all-encompassing, pervading into all corners of one’s existence. Except that this need not be the case as we understand our pain, develop our thinking to take the right action and focus, utterly focus upon the vision of how we want to be living. All too often the messages given and auto-suggested are negative and inaccurate and hence as soon as the thinking is right and based on what we really know about pain, the person will see the opportunity to move forward towards a meaningful life once more.

A to Z of pain:

Attitude to pain affects what you think and the action you take.

Behaviours are chosen based on your beliefs; work on your beliefs about pain by really understanding it.

Change happens in the wake of developing your thinking about pain.

Decide to focus on what you can do rather than what you can’t.

Energise yourself with movement, breathing, diet and engagement with people who nourish you and make you feel good.

Focus on your vision of who you want to be and what you want to be doing. Re-visit this focus often each day.

Galvanise your strengths and focus on them to develop and grow.

Habits of health created by you.

Intelligent emotionally to be aware of how you and others are feeling so that you can make positive changes by focusing on your strengths.

Jump for joy as often as you can; if not literally, then in your mind — imagine jumping!

Kick unhealthy habits by developing your strengths.

Laughter has great effects on health and you.

Meaning is key for engagement at work and in relationships, so create a meaning for all these situations.

Notice what is happening right now; be mindful and see how anxiety drops and you feel better. When you feel better, your pain feels better.

Observe your thoughts rather than being embroiled in them.

Persevere to achieve your vision.

Quiet time to re-charge.

Refresh often during the day with movement, breathing and creating calmness in your mind.

Success comes with perseverance, choosing to think positively, learning from mistakes and focusing upon your vision.

Tell yourself positive messages over and over and notive how you feel — also using your own body language: sit up, stand tall, be proud becasue you are worthy.

Understand your pain is undoubtedkly the fisrt step in overcoming pain.

Virtues and morals drive what we do because that’s what we believe. They should be in synch with those of our relationships and work.

Worthy of overcoming pain and living a meaningful life – you are!

X factor is something we all have. Use it to motivate yourself and change emotional gears.

Yes I can.

Zzzz’s are an absolute must for health. 8 hours.

* These thoughts derive from the Pain Coach Programme for overcoming chronic pain.

There is a programme for individuals suffering chronic pain and a mentoring programme for clinicians who work with people with chronic pain problems who want to develop their skills and strengths. Call us now: 07518 445493

13Jul/15
By Tess Watson | https://flic.kr/p/8W6Gkm

Pain and society

By Tess Watson | https://flic.kr/p/8W6Gkm

By Tess Watson | https://flic.kr/p/8W6Gkm

Pain and society — Pain is an issue in society, and for society. Why pain has become the number one global health burden is a question that we must consider and answer using on-going study of what pain really is, how it influences us, how we influence pain, how pain emerges from individuals who form society and how society views pain. No mean task, however we must envision where we want to be as a society and focus on getting there.

One of the biggest problems with pain is that it is misunderstood. The predominent thinking remains in the pathological and body structure camp as an explanation for pain. This thinking needs to develop across the whole of society, in fact begining in schools where I believe children should be taught about pain.

Fear is a huge factor in pain — what does this mean? Will it get better? Will this pain ever go away? Etc etc. Of course those who understand pain will know that these very thoughts are ample to fuel further protection and hence pain. We need people to understand that pain emerges in them as an individual, very much flavoured the situation in which the pain is noted, influenced by past experiences, beliefs about pain and immediate thoughts and emotions. There are reams of papers examining these factors. The early messages are vital when someone has injured themeselves or suffre an acute episode of pain. The right thinking from the outset creates a way forward with effective behaviours and actions to allow the body systems to co-ordinate healing and recovery. Unnecessary fear and worry simply divert resources away from these processes and hence affect the outcomes. We do not need to fear pain but rather, take action and deal with pain.

When someone has more persisting pain, and this is likely due to certain vulnerabilities that we are understanding more and more, again the mesages must be clear and accurate. The notions of management and coping are just not good enough. We can deliver much better care, advice, coaching and treatment than ‘management’ implies. This is beneficial for the individual, the funder and hence society as a whole. Society needs to be purporting the right messages about pain and therefore we need to develop thinking on a large scale.

When I studies the Pain MSc at Kings College London under Dr Mick Thacker, I used to wonder why it was called ‘Pain: science and society’. Whilst I do not know the exact reasons for KCL’s entitling of the course, now it is obvious to me that we have a huge societal problem that needs urgent attention. There is a responsibility for all of us to come together and develop so that change occurs in the wake of new thinking based on the huge amount of research into pain. We need the support of the policy makers, businesses and individuals. Why policy makers and business? Because we can change what is happening now including the vast cost of chronic pain — this huge pot of money could become available for many other areas of life. So let’s move forward together.

If you are a policy maker or a business recognising the effects of chronic pain on society or upon your business, contact me for information on shifting and devloping thinking to take big action. t 07518 445493

Pain and society by Richmond Stace

11Jul/15
By LordEfan | https://flic.kr/p/kUfKKZ

Pain and the perfectionist

By LordEfan | https://flic.kr/p/kUfKKZ

By LordEfan | https://flic.kr/p/kUfKKZ

Pain and the perfectionist could be a title of a book in which the character suffers on-going pain, seeking to conquer himself using his perfectionist traits. I know of no such book, but I do know that a significant number of people who I see with chronic pain are perfectionists.

Like most things though, it is how you look at it that makes the difference. Most traits that we exhibit have a benefit and a purpose in our lives in one quarter but can be problematic in other arenas. Perfectionism is no different.

Whilst being a perfectionist would be highly adaptable when studying the detail of a document, arranging a bouquet or organising an event, when this spills over into being hard upon oneself, it can push the individual too far. Compassion must start with the self — being kind to yourself. It is all too common that people are self-critical, either overtly or more frequently via the inner dialogue. Continually telling yourself that you are not good enough or that you will never achieve is the exact opposite of believing in yourself. If there is one characteristic that is vital in overcoming pain, it is the belief that you can do it.

The sense of never being quite good enough is a safety mechanism of sorts. On the flip side it may drive the individual to practice or work harder, and this is acceptable if it does not cause angst and on-going stress that is incongruent with health and a feeling of wellness. Chronic stress is a significant issue in the modern world, having a huge role in many of the common problems that we see today — e.g. functional pain syndromes such as IBS, headache, migraine, functional abdominal complaints. Chronic stress causes the body to set itself in an inflammatory state, and there is a constant preparedness for action to fight or run away from a wild animal. Except there is no wild animal, just our thoughts and interpretations. These we can learn to observe rather than become embroiled within with techniques such as mindfulness.

Perfectionism is a strength that we can foster as part of the programme of overcoming pain. I base my treatment and training programmes upon your strengths as these are what we use in life to succeed, and succeed you will by nurturing these within an action plan that takes you back to a meaningful life. It is easy to say don’t be too hard on yourself, yet difficult to master. But it is possible to harness the strength of perfectionism and use it to overcome your pain.

For information about the Pain Coach Programme to overcome chronic pain, call 07518 445493. The Pain Coach Programme is also a learning programme for clinicians who want to develop their skills, either 1:1 mentoring or in small groups. Call us for details or email [email protected]

 

10Jul/15
You are beautiful by La Melodie https://flic.kr/p/99ACEa

Pain and guilt

You are beautiful by La Melodie https://flic.kr/p/99ACEa

You are beautiful by La Melodie https://flic.kr/p/99ACEa

Many people who I meet will describe their pain and guilt. Naturally they come to tell me about their lived experience of pain and how this impact upon their lives. They narrate a story in which they are the person who has lost their sense of self, who they think that they should be and how they think their life should be. In answer, I will seek to make sense of their story with explanations and a route forward (the coaching and treatment programme). Then we encounter the challenge to surmount feelings of guilt at the thought of dedicating time to ‘me’ in order to overcome the pain. How will I do these things when I have to…….? You can fill the gap with work, be a wife, be a husband, be a mother etc etc. Familiar feeling?

So here is the deal. You actually deserve to get better because you are worth it. One of the common themes in chronic pain is that the sense of self-worth diminishes, if it was not already ground down by life’s experiences over the years. This is certainly something that needs to be worked upon as part of the coaching programme, along with self-belief, self-efficacy, confidence, focus, resilience and motivation to name a few.

How can we do the things that we need to do in both thought and action, if we do not prioritise? It is your job to get better.

A clever programme will easily interlace into your life rather than be seen to be something separate. We have a lived experience and the development of self to change health and pain is moment to moment. It is as simple and as hard as developing new habits using the skills and strengths that you already possess. A clever programme will use your strengths to overcome your pain. And by overcome, I mean resume a meaningful life, and what this means to you — not the clinician or anyone else, you. When you feel like you, according to you, then all those around you will benefit as well. So as much as you may begin by viewing the prioritisation of the programme as being selfish (and I hope you do not now, or did not, but soon you won’t), to be you again requires that you do make this one of your top 3 priorities. You are not separate from your environment or the people in that environment, and hence you need to focus on you and those around you need to develop their thinking about this as well.

For this reason, I encourage partners and family to come to some sessions, or even come on their own to develop their thinking and to see their role in your recovery. You could even start by asking them to read this blog.

To be you is not to be selfish but a vision to be achieved.

For further information about the Pain Coach Programme to overcome pain, call now 07518 445493 — you deserve it!

08Jul/15
Lateral view of neck by Double-M https://flic.kr/p/9swvo6

Dystonia coaching programme

Lateral view of neck by Double-M https://flic.kr/p/9swvo6

Lateral view of neck by Double-M https://flic.kr/p/9swvo6

The dystonia coaching programme that I have developed over the past few years is based on similar thinking to that of persisting and complex pain. In fact, the reason why I started working with people experiencing dystonia is because of a conversation with Dr Marie-Helene Marion (the movement disorder specialist).

We were discussing biology, people and influences, thinking that we were talking about the same thing, but in fact I was talking about persisting pain and Dr Marion was talking about dystonia! From thereon it was clear that there are significant parallels in what we see and who we see, leading to an innovative approach based on the latest neurosciences. I was fortunate enough to talk about this at The Dystonia Society meeting and The British Neurotoxin Network conference.

Most cases of dystonia that I see are cervical. This is a troubling condition in many ways, including the social aspect that is commonly forgotten. By this I mean how dystonia impacts upon the person’s social interactions due to the way it can make them feel about themselves. This is such an important part of the problem, as the way we think and feel affects our sense of self and how we move. With a movement disorder, this is highly pertinent. Our thoughts and feelings can frequently be impacted upon by the way we think others see us, potentially driving behaviours such as avoidance and protective posturing, both of which affect quality of life.

There are several other notable consistent findings. An altered sense of body position that underpins the imprecision of knowing where your body is in space and the movement imprecision that is the classic sign. In fact, it is the sensorimotor function that is a problem as a whole, influenced by a range of factors such as thoughts, emotions, the environment. As with pain, dystonia is a whole person problem and as such requires whole person thinking behind the treatment and training programme.

Botox treatment often has good effects when used at the right dosages. Commonly people become engrained in thinking that they must have injections every 3 months, with this expectation influencing behaviours and outcomes. In my dystonia programme we immediately aim to develop this thinking into how we can gap out the need with specific training but also challenging unwarranted expectations. It is exciting to think that drugs are affected by the way we think as it opens the door to great possibilities.

Much like the Pain Coach Programme for persisting pain, the dystonia programme targets the person: their thinking, emotions, movements, sensations as a whole. There are specific training exercises that take advantage of our ability to develop (commonly called neuroplasticity) and learn, and a range of strategies that target the influences upon the way we move and face the world including stress, anxiety, thoughts, other people and the environment. Our understanding of ‘how we work’ is ever-growing and this is cause for great optimism as we see people overcome chronic pain and dystonia in theor own individual way.

For more details or to book an appointment, call now 07518 445493