Category Archives: Ehlers-Danlos Syndrome

04Mar/14

Ehlers-Danlos Syndrome (EDS) – a personal experience

Huge thanks to Kayleigh (Follow Kayleigh on twitter @KsEDSchallenge) for sharing her experience of Ehlers-Danlos Syndrome (EDS). The way that clinicians and the public truly understand conditions is through the personal stories that are described first hand.Read More…

09Jan/14

PoTS — Postural tachycardia syndrome

Postural Tachycardia Syndrome The autonomic dysfunction that manifests as PoTS is poorly understood yet can cause alarming and distressing symptoms that hugely impact upon an individual’s quality of life. The experience of PoTS includes dizziness, palpitations andRead More…

08Jan/14

We must think more widely on hypermobility and joint hypermobility syndrome

Commonly when a patient presents with hypermobility or joint hypermobility syndrome (JHS) there are a range of other problems that are painful or at least involve some sensitivity. This can include headaches, migraines, pelvic pain, chronicRead More…

07Jan/14

Lesser known problems associated with Ehlers-Danlos Syndrome and Loeys-Dietz Syndrome

Here is a selection of reports and studies that discuss lesser known features of Ehlers-Danlos Syndrome (EDS): Unexpected association between joint hypermobility syndrome/Ehlers-Danlos syndrome hypermobility type and obsessive-compulsive personality disorder. Rheumatol Int. 2013 Nov 23. — PasquiniRead More…